The Bridging Gaps in the ELSI of Data Science Research (BridgELSI) Project is a collaborative research ethics study and training project that is focused on bridging the gaps in current governance framework on ethical oversight of data science health research by engaging key stakeholders to evaluate and co-develop novel governance framework for the Ethical Legal and Social Implications (ELSI) of data science health research in Nigeria. The project will implement short and medium-term training on ethics of data science for data scientists, ethicists and ethics committees, and strengthen the ethical working environment for data science health research in Nigeria.

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Prof. Temidayo O. Ogundiran
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Prof. Clement A. Adebamowo

The Team

The study personnel are experts in various fields (including bioethics, biostatistics, research ethics, law, program evaluation, qualitative and quantitative methods, epidemiology and public health).

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Ongoing Activities

Specific Aim 1a.

Aggregation and analysis of current frameworks for oversight of data science health research in Nigeria

The legal team is examining laws, policies, guidelines, and frameworks relevant to all aspects of ethical conduct of data science health research in Nigeria, including the collection, storage, manipulation, analysis, and generation of results/reports from conventional and non-conventional data and their combination. The team will analyze these various laws, policies, guidelines, and frameworks to identify their authorities, weights, and jurisdictions. The team is doing this to determine whether these instruments effectively cover ongoing and emerging ELSI of data science health research in Nigeria.

Legal Scholars

  1. Professor Simisola Akintola
  2. Professor Shawneequa Callier
  3. Dr Oluchi Maduka
  4. Miss Jennifer Kukucka

Specific Aim 1b.

Key Informant Interviews (KII)

Expert Team

  1. Professor Clement Adebamowo
  2. Professor Ayodele Jegede
  3. Dr Sally Adebamowo
  4. Mr Adeola Akintola

After reviewing the legal team’s findings, the KII team is conducting an evaluation of stakeholders’ knowledge and perceptions of the effectiveness of the current governance framework as well as their recommendations for a novel governance framework for the protection of participants in data science health research in Nigeria.

The study sample includes representatives of stakeholders in data science health research in Nigeria:

  1. Researchers involved in data science projects in Nigeria.
  2. Members of ethics committees of institutions hosting DS-I Africa project(s) in Nigeria.
  3. Officials of Ministries of Health, Justice, Communication, Science and Technology and Education in Nigeria.
  4. Key stakeholders in Nigeria data science private sector.
  5. Key Opinion Leaders (KOL) on data science, health research and IT in Nigeria.

Specific Aim 1c.

Developing a novel governance framework for Data Science Health Research

A working group will be formed from the stakeholders who participated in the KII. We will use the Modified Delphi Technique to engage this working group in developing a novel governance framework for data science health research in Nigeria. The novel guideline will be presented to the National Health Research Ethics Committee for adoption and implementation. The working group will continue to exist because we expect increased awareness in the coming years and throughout the project’s duration.

Experts

  1. Professor Simisola Akintola
  2. Professor Shawneequa Callier                
  3. Professor Clement Adebamowo
  4. Professor Temidayo Ogundiran
  5. Dr. Oluchi Maduka

Media

Global Forum on Bioethics Research (GFBR)

November 2022

On November 29-30, 2022, we presented the BridgELSI project at the 2022 Global Forum on Bioethics in Research Conference, held at the Lord Charles Hotel in Cape Town, South Africa. The conference’s theme is Ethics of AI in Global Health Research. The BridgELSI postdoctoral researcher Oluchi Maduka presented the preliminary research results at the Pecha Kucha session.

2nd DSI-Africa consortium meeting

October 2022

We attended the Second DS-I Africa Consortium Venue at the Protea Breakwater Lodge and UCT Graduate School of Business (GSB) Conference Centre in Cape Town, South Africa, from November 29 to October 3, 2022. Co-Investigators Professors Simisola Akintola and Ayodele Jegede, as well as trainees Dr Oluchi Maduka and Mr Adeola Akintola represented the BridgELSI team.
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